He happily plays all day long, but during the night his sleep apnoeas are causing him to wake many times a night, though he tends to generally settle himself it does wake me up every time I hear him... every time...
Still waiting to be assessed for any help that we can get, in the meantime I have found a lovely and trained babysitter called Ella who has been having Ethan (and Ben) for a few hours a week so I can be me and listen to rock music!
I am now actively looking for part time work, although this may seem like an odd time to start, I feel I need to now. Hopefully Ethan will be in school for as long as he can be and then I will be just twiddling my thumbs. Its time to get out there!
Ethan's prognosis is still the same, his lungs will be his downfall but in the meantime he keeps smiling and life keeps moving on, and so must I. So off to work I go! Once I find a job that is!