I will always miss the birthdays I should have had with Ethan, the Christmas's, the Easter's.
As it approaches Easter again I am taken back to last year, when my family came to visit Ethan. A well Ethan, who was walking and very loving. This year Ethan is not with us, and I wish I could rewind time to take me back to last year. The cuddles, the love and his smile.
Ethan was an incredible child, a child who suvived despite the bleakest odds. A child who sadly died despite every effort.
I do really wonder what if he had the Synagsis injection that winter.. would he have lived?
When I think of Ethan I think of his smile, his blonde curly hair and the many times he made me laugh. He was so intelligent, despite his brain injury and I think he understood a lot more then he let on.
I have to cherise those memories and hope that his story will help others.