The PCN come in to see us twice a week now, to check his SATS and do his observations, breathing rate etc.
His breathing rate has still increased from when it was in hospital but he is still happy. changing the diuretics has not helped really. He is really stuffy especially overnight and in the morning! I have a vicks vapour plug in, a humidifier, am using ky jelly in his nose and have bought a baby nose clear. Which is a device that you put in his nose to suck all the gunk out! It is great and works really well. I just have to loosen all the gunk with saline first and it is hit or miss as to whether any will loosen! Some days it does some days it does not!
His oxygen has increased so we have two oxygen concentrators now, one that goes above 1 litres and one that goes below 1 litre.
I have a meeting at the hospital to discuss the parent network. I hope it comes off as I think it will really help.