They all love Ethan but then how can you not with his huge grin and wonderful singing.
He still is not moving his legs very much and has taken to lifting a foot on to his knees so that he can sit cross legged! Very funny to watch!
I spent a week away trying to rest before the move which is happening this weekend but that was easier said then done, though it was nice for the children to get away and I did enjoy myself.
Today Ethan went into the hydro pool which he enjoyed but this afternoon he seemed very tired and flushed with a rash on his body. It is perhaps just something post his swim but could also be a viral rash which is not something we want just now. He also had a few coughs. Hopefully it is just nothing.
I have to remember that Ethan's normal is not what is normal for him now. His oxygen was turned up today as he was struggling especially when he is asleep. His normal now is to be slightly dusky/blue at times though he has his pink moments. We are not checking SATS as they can change so quick and there is no point if we are not going to do anything about them.
Ethans prognosis has not changed but he has done better then we had thought, at the moment he is a happy little boy and t