Ethan is now 24lb 11oz! He is soo heavy! We have just started to lower his oxygen - he was on 1.5ltr but we lowered to 1ltr - with advice from his local consultant and PCN. But we had to raise it yesterday to 1.2 during the day and maybe have to put it back up to 1.5 at night. Slowly but surely we are getting there. We went to GOSH to see respiratory - they want to do a over night study there to see if he can be weaned off oxygen as we dont have a SATS machine at home. Now that the local consultant is going to give us a SATS monitor hopefully we wont need to. Weaning has taken a backward step, he really doesnt want me or anything else near his mouth. So going to take it back to the beginning I think. He is getting stringer when he is laying on his frotn and moves a little, he loves his Jumperoo which our friends Tara, Stella and Keira have lent us! Just really want him more mobile now and maybe saying a few words. He loves music and likes to rock back and forth to it, holding his hands in the air!
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AuthorAn ordinary Mother with extraordinary children! Categories |