So we went back to Southend. I was pleased to see the new house - and BF and kids ofcourse! I just wanted to make a plan for home. It is now almost 9 months since his birth and all I wanted conversations to be about was home. Initailly meeting with Ethans consultant proved hard to come by. It seemed his feeding was the only issue and so I hope we have found a way to combat that. ethan still is fed NJ contionously but the plan is to try to get him to having 6 hours off feeds over night.
Ethan did pull his NJ tube out 9th July they failed to get a new tube in until 12th July. He became upset about not being fed and so his oxygen went up to 2litres! I was so worried, his Xray showed no change and his blood gases were good but his CRP - infection marker was up to 70. He is still on antibiotics - having a 5 day course.
We have a meeting planned for 22nd July to find out if we can take him home! I cant wait.
I have done my life support training and nearly finished my NG training. Hopefully not much more to do!
Today 15th July Ethan was playful, I took him to the play room and had some play time with him. He was so tired afterwards - rubbing his eyes! He was a bit snuffly but I think it could be where he has all his tubes in! The Physio came to see him and listened to his chest and thought it sounded clear so that was reassurring.
Ethan did pull his NJ tube out 9th July they failed to get a new tube in until 12th July. He became upset about not being fed and so his oxygen went up to 2litres! I was so worried, his Xray showed no change and his blood gases were good but his CRP - infection marker was up to 70. He is still on antibiotics - having a 5 day course.
We have a meeting planned for 22nd July to find out if we can take him home! I cant wait.
I have done my life support training and nearly finished my NG training. Hopefully not much more to do!
Today 15th July Ethan was playful, I took him to the play room and had some play time with him. He was so tired afterwards - rubbing his eyes! He was a bit snuffly but I think it could be where he has all his tubes in! The Physio came to see him and listened to his chest and thought it sounded clear so that was reassurring.